I haven't written in so long i feel like I have so much to catch up on.
First thing is first, I want to tell you how insane it is to me that Ethan will be 11 months old in two days. Where has the time gone? It has been both a fast and a busy 11 months. Ethan has overcome so many things in just 11 months and has experienced more than any 11 month old should. It is crazy to think how someone who is just 11 months old can inspire you more than anyone you have ever met. He has changed our lives forever, he has opened my eyes to the beauty in people, and the strength in people.
It is so cute to watch Ethan grow up, he is learning at his own pace and I couldn't be more proud. He gets excited over the smallest of things and thinks the weirdest things are hilarious. You can't help but to laugh with him. He recently figured out that if he cries he tends to get what he wants more, we need to break him of this but it is so hard after him not being able to cry for so long.
Ethan has also figure out a fake cough and fake laugh it is so funny what he will do to get someone's attention, it is not like he lacks attention at all. He is also trying to figure out what those white things in his mouth do, he can't quite figure it out. he is constantly sitting there feeling his teeth with his finger.As far as the cast goes, he did well the last surgery. ( June 2nd) From what the surgeon said his hip looks great and is doing exactly what is is supposed to do. THANK GOD I was so worried they were going to tell us it wasn't working and that he had just worn the cast for 7 weeks for nothing. So he is in this one for 5 more weeks, and then goes back in for a new cast on July 8th. Hopefully this cast will be shorter and his legs will be able to breath a little. We were a little disappointed after talking to the surgeon and finding out that after his last cast that Ethan will have to be in a brace. Kevin and I were thinking maybe a few weeks, then the Dr. told us it could be months or it could be years you never know. That was a little discouraging to hear, all I could think about is how much more this will delay him in all the milestones, already the cast has delayed his rolling over, his sitting, crawling, and walking. If this brace is on for years then what? We are praying that that won't be the case but need to prepare ourselves in case it is.
This cast is a little more bent at the knees and it seems to be more uncomfortable for Ethan. I am not sure if it is the cast or if it is just the heat of summer in the cast or what but he seems a little more frustrated. He also just wants to move so bad , it even frustrates me. you can see him trying but the cast will not allow him. He is still a trooper and still handles the cast better than I ever could.
We started speech therapy recently and are trying to teach Ethan sign language. It is so hard because he hasn't really been catching on. They want us to practice with just one word at a time, his first word is MORE. They want us to take his bottle away and sign to him MORE so he understands what it means. Instead Ethan starts Crying when you take his bottle away and won't even open his eyes to see that you are signing the word to him. I am trying to use more anyway it makes sense but I am having a hard time getting him to pay attention to me when I do it. If anyone has any suggestions please let me know....
For some exciting news.... This Friday we are 1 of 8 families going to the PWS Clinic at Children's Hopital. I am so excited. It is from 7 to 1 and you meet with 8-12 different specilaist all related to PWS. This will be such a great experience and a great way to ask each DR. specific questions. Once the Clinic is over all the specialist meet up and evaluate your child together. I can't wait to get a plan of action from them and to figure out what more we can be doing to make Ethan better.
Well that is enough rambling today I will be better about keeping up my blog, and will be back to let you know how the clinc went.
