Time for a little venting... I am not sure if people just don't get it but people just drive me nuts some of the things they say to me when it comes to Ethan
1. Can not stand the word Retard... I will be the first to admit that I was terrible with that word before Ethan and I would say it completly out of context, and would never actually mean it. But even before Ethan I would never say it around a friend or family member that I know has a son with a disability. I know 99% of people don't mean it when they say it, but come on have a filter. It shocks me everytime when I will be holdinbg Ethan and people will say it and not even think that it could bother me. At that point it feels personal and it makes me sad to think Ethan will have to deal with this for the rest of his life.
2. When strangers come up and ask me what is wrong with my child.... We can not go anywhere without people constantly asking what is wrong with Ethan.... Sometimes I know it comes from a good place, but sometime you just want to go to the store, or home depot or a walk in the neighborhood without answering the same question over and over. Some times you just want to be a normal family without always explaining his cast, and why he is weak, and why he doesn't crawl, or say words.
3.When people try to tell me how lucky I am.....
So far I have gotten:
when Ethan was younger:
"you are so lucky you can't breastfeed because it is so hard" really am I? am I lucky that I am feeding my child with a feeding tube?
or
when Ethan was younger:
" You are so lucky your son doesn't cry" Only people who have been where we have know how badly you would love to hear your child cry. We waited 4 long months before Ethan had the muscle tone to cry.
or
Recently:
"gosh you are so lucky your kid can't crawl or walk and you don't have to chase him around" are you kidding me? you think I am lucky that we have to go through insane amount of Physical thearpy, and my son is in a body cast for a 3rd of his life and is getting further and further behind?
It just blows my mind some of the stuff that comes out of peoples mouths... what we are lucky for is that we have such an amazing little boy with a beautiful little heart. we are lucky that we were the parents that got such a special gift.
It makes me mad when people say retard or retarded. In Ireland I learned the Gaelic translation for retard is 'Child of God'... I like that much better. Hang in there lady!!! -Meghan
ReplyDeleteI love that..... Molly
ReplyDeleteEthan is lucky to have you two for parents!
ReplyDeletePeople are ignorant and with ignorance comes bliss!
Go on with your life and know you guys are very loved!
Love, Michelle