Thursday, August 18, 2011

UPDATE- I HAVE BEEN SO BAD ABOUT KEEPING THIS UP

* ETHAN IS ROLLING OVER AGAIN, YAY!- AFTER HIS CAST ETHAN HAD NO MUSCLE TONE AND WE PRETTY MUCH HAD TO START OVER, BUT HE IS BACK!
*ETHAN IS SITTING BY HIMSELF NOW- THIS IS VERY EXCITING FOR US SINCE RIGHT BEFORE THE CAST THIS IS WHAT WE WERE WORKING ON. HE IS BACK TO WHERE WE LEFT OFF, BUT STRONGER THIS TIME. HE LOVES HAVING THAT LITTLE BIT OF INDEPENDENCE.
* ETHAN IS GAINING WEIGHT- AT THE PWS CLINIC WE FOUND OUT ETH WAS PRETTY UNDERWEIGHT, SO WE STARTED HIM ON A WHOLE NEW DIET. IT SEEM TO BE DOING THE TRICK. WE WANT ETH TO BE UNDERWEIGHT FOR AN AVERAGE 13 MONTH OLD BECAUSE HE HAS NO MUSCLE, SO HE IS STRICTLY FAT, BUT WE STILL NEED HIM TO GAIN SOME WEIGHT TO BE ON TRACT FOR WERE OUR PWS DR. WANTED HIM.
*ETH IS CLOSE TO PUTTING WEIGHT ON HIS LEGS- ETH WILL NOT BARE ANY WEIGHT ON HIS LEGS, WHICH IS ALSO A COMBINATION OF THE LOW MUSCLE TONE AND THE CAST. BUT HE IS GETTING CLOSE. NOW HE WILL AT LEAST PUT HIS FEET DOWN TO THE GROUND AND BOOTY DANCE..... FOR ANYONE WHO HAS SEEN HIM DO IT YU HAVE TO ADMIT IT IS THE CUTEST THING EVER.
* ETHAN IS BECOMIN MORE VOCAL- WHEN HE WAS IN HIS CAST I DIDN'T REALIZE HOW MUCH HE HATED IT UNTIL WE GOT IT REMOVED. HE IS SOOO MUCH HAPPIER NOW, HE LAUGHS AND SMILES CONSTANTLY. HE IS ALSO STARTING TO MAKE A LOT OF NOSIES WITH HIS MOUTH AND STARTING TO GET LOUDER.
* GOT A NEW PHYSICAL THERAPIST- EXCITED THAT WE WILL BE GETTING INTO THERAPY AGAIN ( OUR OLD PT LEFT THE COMPANY AND WE HAVE BEEN WAITING FOR WEEKS FOR A NEW ONE)
* GOT A NEW SPEECH THERAPIST- EXCITED TO SEE HOW ETH WILL DO. WE HAD A SPPECH THERAPIST, BUT SHE ONLY SHOWED UP TWICE AND THEN QUIT AND NEVER TOLD US SO WE HAVE BEEN WAITING A WHILE TO GET A NEW ONE.
* GOT A NEW PEDITRICIAN- YOU WILL NEVER KNOW HOW EXCITED I AM THAT WE MADE THE CHANGE, HE IS GREAT. HE CARES A LOT ABOUT PWS AND ETHAN, AND IT HELPS THAT HE HAS A NIECE WITH PWS. I THINK IT MAKES HIM HAVE A PASSION TO LEARN ABOUT PWS. WE HAD A AWESOME FIRST VISIT AND WE HAVE A GREAT GAME PLAN. IT WAS NICE TO GO TO A DOCTORS OFFICE AN NOT HAVE TO EXPLAIN WHAT PRADER WILLI IS, AND IT WAS NICE TO GO TO A DOCTOR THAT HAS ALREADY LOOKED AT YOUR KIDS RECORDS AND HAS DONE HIS RESEARCH.... VERY HAPPY WITH HIM.

THAT IS ALL FOR NOW HERE ARE SOME PICTURES






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