SEPT 2010- OFF OXYGEN- ETHAN WAS ONLY ON OXYGEN FOR A MONTH AFTER WE GOT HOME. ANOTHER MACHINE I WAS NOT SAD TO SEE GO, THAT THING MADE IF VERY HARD TO TRAVEL WITH WHEN THE TANK WEIGHED FOUR TIMES AS MUCH AS ETHAN.
OCTOBER 2010- ETHAN CRIED THE FIRST TIME SINCE BEING BORN
JAN4, 2011 -FEEDING TUBE- ETHAN WAS SENT HOME ON A FEEDING TUBE BECAUSE OF LOW MUSCLE TONE HE WAS UNABLE TO EAT ON HIS OWN... JANUARY 4TH HIS FEEDING TUBE WAS REMOVED AFTER NOT USING IT FOR 3 MONTHS. AS OF SEPTEMBER 2010 ETHAN HADN'T USED HIS FEEDING TUBE. OCCUPATIONAL THERAPY, AND LONG FEEDING SESSIONS HAVE PAID OFF..... THE DAY I DIDN'T HAVE TO DO THE FEEDING TUBE ANYMORE WAS SO FAR ONE OF MY HAPPIEST.
JAN 30 2011- STARTED GH. AFTER MANY MONTHS FIGHTING WITH THE INSURANCE COMPANIES ETHAN FINALLY GOT APPROVED TO START HIS GROWTH HORMONE SHOTS.
FEB 2011- ETHAN'S EEG CAME BACK NORMAL. NO MORE SEIZURES, AND NO MORE KEPPRA. IT IS NICE TO ELIMINATE A MEDICINE THAT IS TWICE DAILY SINCE HE HAS TO MANY.
FEB 2011- WORKING HARD IN OCCUPATIONAL/PHYSICAL THERAPY ETH WAS ABLE TO LIFT HIS HEAD ON HIS OWN.....THE BEAUTY OF PRADER WILLI IS EVERY MILESTONE MEANS SO MUCH MORE, AND ISN'T JUST OVERLOOKED. THAT WAS A NIGHT OF CELEBRATION FOR US.... MAN HE MAKES ME SO PROUD!
FEB 2011- ETHAN ALSO ROLLED OVER ALL BY HIMSELF.IT IS SO HARD TO THINK BACK TO THE FIRST MONTH WHEN HE WOULDN'T MOVE AT ALL, AND NOW HE IS ROLLING OVER IT IS JUST AMAZING.
MARCH 2011- ONE OF OUR SCARIEST DAYS ....ETHAN WENT THROUGH TWO SURGERIES: ONE TO CLOSE UP HIS STOMACH FROM HIS G- TUBE SO IT WOULD STOP LEAKING, AND ALSO A AN ORCHIOPEXY ( BRINGING DOWN AN UNDECENDED TESTICLE) HE IS SUCH A STRONG, TOUGH BOY. HE IS A TROOPER.....
MARCH 2011- ETHAN CAN PROP SIT, AND MAN DOES HE LOOK CUTE DOING IT. THIS IS DEFINTLY NOT HIS FAVORITE THING TO WORK ON, BUT SLOWY HE IS GETTING IT.
NOW I WILL CATCH YOU UP ON PICTURES- SORRY NOT IN TIMELINE ORDER
SLEEP STUDY JANUARY
LAUGHING AT DADDY
FIRST CHRISTMAS
FIRST HALLOWEEN PROP SITTING
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