INSPIRATION OF BLOGGING

WHEN I FIRST TOLD MY HUSBAND I WAS WRITING A BLOG, HE ASKED " WHY WOULD YOU WRITE A BLOG WHO IS GOING TO READ IT?"

I TOLD HIM THAT WHEN ETHAN WAS FIRST DIAGNOSED I LOOKED FOR SUPPORT , FOR ANSWERS AND FOR SOMEONE ELSE WHO KNEW WHAT WE WERE GOING THROUGH . NOT ONLY DID I FIND AN AMAZING GROUP ON FACEBOOK  WITH HUNDREDS OF FAMILIES WHO HAVE BEEN IN OUR SHOES, I ALSO FOUND ALOT OF THE PARENTS BLOG ABOUT THE EXPERIENCE WITH RAISING A PWS CHILD.

AS I STARTED READING THESE BLOGS IT MADE ME REALIZE THAT WE AREN'T ALONE AND THAT THERE ARE PEOPLE WE CAN TALK TO AND ASK ADVICE. ALSO WHEN YOU READ SOMEONES PERSONAL STORY YOU FIND OUT THAT YOU AREN'T THE ONLY ONE THAT HAS A BAD DAY AND YOUR NOT THE ONLY ONE THAT GETS BROUGHT DOWN BY THIS SYNDROME. IT'S OKAY TO GET FRUSTRATED, LOSE PATIENCE AND BE SAD SOMETIMES, AND IT'S OKAY TO GET SICK OF BEING AT THE DOCTORS AND MEETING THERAPISTS AND SPECAILIST.

BLOGS HAVE ALSO GIVEN ME HOPE FOR THE FUTURE. IT IS NICE TO SEE OTHER PEOPLE WHO SHARE THE SAME JOY THAT WE DO WHEN THEIR CHILD REACHES A MILESTONE, A MILESTONE WHICH WOULD REGULARLY NOT BE SUCH A BIG DEAL BUT TO US IS HUGE. IT IS AMAZING TO SEE PICTURES AND VIDEOS  AND WATCH THESE KIDS GROW AND SUCESSED. IT IS FUNNY HOW MUCH JOY I GET FOR THESE CHILDREN THAT I HAVE NEVER EVEN MET BUT SOME HOW FEEL I HAVE A CONNECTION TOO THROUGH ETHAN.

BLOGS HAVE ALSO BEEN A GREAT PLACE TO FIND ADVICE AND FIND THINGS THAT HAVE WORKED FOR OTHER PARENTS. I HAVE GONE TO THE DOCTOR WITH MANY OF SUGGESTIONS THAT I WOULDN'T HAVE EVEN KNOWN ABOUT IF IT WEREN'T FOR READING OTHER PEOPLE'S EXPERIENCES. I WOULD HAVE NEVER KNOW ABOUT THE INFAMOUS DR. MILLER IF IT WEREN'T FOR CONNECTING WITH OTHER PARENTS.

SO I GUESS MY  ANSWER TO MY HUSBAND WOULD BE " I AM WRITING A BLOG IN HOPES THAT WHEN A NEWLY DIAGNOSED MOM WHO FEELS AS LOST AS I DID WILL READ IT, AND FIND THAT IT IS OKAY TO FEEL HOW SHE FEELS, AND WILL SEE THERE IS HOPE FOR THE FUTRE, AND THERE  ARE MANY PARENTS WHO HAVE BEEN IN HER SHOES.

JUST BECAUSE HE IS CUTE !!!